PaRIS Survey
The PaRIS (Patient-Reported Indicator Survey) Survey of People Living with Chronic Conditions is the first international survey of patient-reported health outcomes and experiences of adults living with one or more chronic conditions. The goal of the survey is to understand how effective care is from the patient’s perspective, and to improve the performance of primary care services.
Take part ☛
General practitioners needed,
the main phase of the PaRIS survey is a go!
Following the pilot phase, it is now time to launch the main phase of the PaRIS survey.
Your participation and feedback during the pilot phase helped us revise some key points to encourage you to participate even more. Many of you pointed out the workload and confidentiality issues related to the selection and sharing of patient contact details. We took note and made changes in the main phase of the PaRIS survey, namely:
- Sharing of eligible patient data. You will no longer be asked to share the contact data of selected patients. The LIH (Luxembourg Institute of Health) will provide you with envelopes containing the necessary materials for inviting eligible patients.
- Patient selection. The LIH will provide you with all the necessary support for the random selection of eligible patients.
- Workload. Financial compensation equivalent to +/- two medical consultations, estimated at +/- 110 euros, will be paid to compensate you for the time spent sampling patients and sending the invitations.
Why are we doing this survey?
Many countries are facing a rapid increase in the number of people living with one or more chronic diseases. On top of the overall ageing of the population, this increase poses a grave challenge to their health systems. Carrying out the PaRIS survey will help to obtain more information on the functioning of primary care services from the patient’s perspective by collecting and analyzing data provided by patients living with chronic conditions, including their health experiences and outcomes.
What is PaRIS survey?
How do patients experience care? Do they get the outcomes they expect? Unfortunately, these metrics are rarely measured in a systematic and rigorous way. It is difficult to improve what is not measured.
PaRIS helps health systems focus on patients by systematically collecting data on the outcomes and experiences that matter most to them, revealing how health systems contribute to people’s lives.
This information allows health services to learn and improve, and to deliver the ultimate objective of health care: maximizing people’s health and wellbeing.
Luxembourg joins an international effort
The LIH has been mandated by the Directorate of Health of the Ministry of Health to carry out the PaRIS survey in Luxembourg. This survey has been commissioned by the Organisation for Economic Co-operation and Development (OECD, https://www.oecd.org/health/paris/), on behalf of its members.
PaRIS is an international initiative conducted in 23 countries around the world. Luxembourg is taking part in this survey, and will use the findings to improve health services for patients, their families and communities.
How does it Work?
The PaRIS conceptual framework links two data sources in the main survey:
- Data provided by patients about their demographics, health conditions, health literacy level, and health behaviors. The patient-reported measures on general physical, mental, social health outcomes and experiences of health care.
- Data provided by health care providers about clinic characteristics, remuneration and care models.
The main phase of the study aims to recruit 75 GPs and 75 patient/GP pairs according to specific inclusion criteria.
Who will PaRIS help?
- Policy makers, by having better information on where to focus quality improvement efforts and prioritise spending.
- Health care providers, by better understanding how to improve the quality of the care they provide.
- Patients, by having their say on their outcomes and experiences.
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