Patient & Public Involvement (PPI)
Patient and Public Involvement (PPI) in Biomedical Research at LIH: Empowering Collaboration with Researchers
At the Luxembourg Institute of Health (LIH), we are taking a significant step towards a more inclusive and empathetic approach to biomedical research. Our focus is on placing patients and the public at the heart of our research projects and initiatives, actively involving them in every step of the process.
The Benefits of PPI
We actively seek motivated patients who are willing to collaborate with our researchers by sharing their own personal experience of their illness. These patients will act as partners in our research, providing invaluable insights that complement the work of our researchers and help researchers better understand and meet the real patient needs. If you are interested in becoming a patient partner, you can find more information in our dedicated recruitment page.
Established dedicated patient groups undergo specialised training to develop Patient and Public Involvement (PPI) activities with researchers, therefore facilitating meaningful exchanges between patients and researchers. Through this close and instrumental collaboration, we aim to empower patients to act as true research partners in the field of biomedical research.
A Collaborative Approach
This collaborative approach reflects LIH’s commitment to patient-centred research, where the voices of patients, their families, and caregivers are instrumental to better tailor biomedical research. LIH is thus paving the way for more transparent, relevant, and responsible research that addresses the real needs of those affected by diseases.
Specialised Training for Effective Collaboration
As part of our commitment, LIH offers specialised training programs for patient partners. These expert-led sessions are designed to immerse participants in the world of biomedical research, guide them through the inner workings of research projects, and ultimately enable patients to play an active and informed role in research projects.
Training Highlights
- Patient Involvement in Research: Understand the crucial role of patient partners in research and how their experiences enrich research perspectives
- Informed and Free Consent: Learn about the critical role of informed consent in medical research, ensuring a comprehensive understanding of research goals, procedures, and potential risks
- Understanding Clinical Trials: Discover how your feedback can improve trial design, focusing on aspects that matter most to patients, such as quality of life, treatment tolerability, and essential outcome measures
- Data Protection and Privacy in Biomedical Research: Explore fundamental aspects of data confidentiality and ethics in medical research, ensuring the highest ethical standards
Bridging the Gap between Patients and Researchers
Collaboration between patient partners and researchers fosters a more holistic, patient-centred approach, ensuring clinical trials meet the real needs of patients while upholding ethical and transparent practices.
By participating in these training programs, patients gain pivotal knowledge that allows them to be informed and active partners in biomedical research. LIH is proud to continue to uphold its commitment to collaborative, responsible research centred on the genuine needs of patients, placing the patient experience at the heart of research.
This active collaboration between patients and researchers inspires new hope for the future of biomedical research, where scientific advancements go hand in hand with a genuine understanding of patients’ needs and aspirations.
Contact Us
Lavallé
Patient & Public Involvement (PPI) Manager
